Ziti Lunch/Dinner Fundraiser 

Friday, October 14, 2016

Proceeds to benefit 

The Galactosemia Foundation

www.galactosemia.org

https://www.crowdrise.com/no-milk-for-joseph-ziti-lunch-and-dinner/fundraiser/nicolecasale

&

Running for Rare/NORD

http://running4rare.org/

   https://www.crowdrise.com/runningforraretscnewyorkcitymarathon/fundraiser/nicolecasale 

To donate or volunteer please contact

Nicole Casale @ nomilkforjoseph@gmail.com

 

 

Our 2016 Ziti Dinner will have some great raffle items and dessert!

 A thank you to our donors:

Price Chopper

Villa Italia

Decrescente 

Yankee Trails

AAA

Bella Napoli

Friehoffers

The Century House

Silver Parrot

U.S.S. Slater

The Little Gym

The Potter Place

The Little Book House and Market Block Books

Different Drummer’s Kitchen Co.

Exit 9 Wine & Liquor Warehouse

ABC Sports and Fitness

Empire Wine and Liquer

Sam’s Club

 

 

 

 

What is the Galactosemia Foundation?

visit: http://galactosemia.org/

The Galactosemia Foundation is a non-profit charitable organization run solely by volunteers.  The foundation realized the need for further information and networking between affected families and professionals.  Their main purpose is to educate, support, and provide advocacy for those affected by Galactosemia, as well as to network with professionals to inspire the treatment and advanced research of Galactosemia.

 

What is Galactosemia?

Galactosemia is a rare metabolic genetic disorder affecting 1 in 60,000 people.  A person with Galactosemia is missing the enzyme to break down galactose.  Galactose is found in lactose, organ meat, fruits and vegetables, and is produced by our own bodies.  Because it cannot be broken down in the body it becomes a poison and can cause serious complications.  This disorder, if not caught in the first 2 weeks of a newborns life, has a 75% mortality rate.  Even those who follow the galactosemic diet may still encounter complications throughout life.  There is no treatment or cure, more research is needed, which is why we need to raise funds and awareness. 

 

FAQs

 

Where can I contact the organizer with any questions?

nomilkforjoseph@gmail.com