Ziti Lunch/Dinner Fundraiser
Friday, October 14, 2016
Proceeds to benefit
The Galactosemia Foundation
Running for Rare/NORD
To donate or volunteer please contact
Nicole Casale @ firstname.lastname@example.org
Our 2016 Ziti Dinner will have some great raffle items and dessert!
A thank you to our donors:
The Century House
The Little Gym
The Potter Place
The Little Book House and Market Block Books
Different Drummer’s Kitchen Co.
Exit 9 Wine & Liquor Warehouse
ABC Sports and Fitness
Empire Wine and Liquer
What is the Galactosemia Foundation?
The Galactosemia Foundation is a non-profit charitable organization run solely by volunteers. The foundation realized the need for further information and networking between affected families and professionals. Their main purpose is to educate, support, and provide advocacy for those affected by Galactosemia, as well as to network with professionals to inspire the treatment and advanced research of Galactosemia.
What is Galactosemia?
Galactosemia is a rare metabolic genetic disorder affecting 1 in 60,000 people. A person with Galactosemia is missing the enzyme to break down galactose. Galactose is found in lactose, organ meat, fruits and vegetables, and is produced by our own bodies. Because it cannot be broken down in the body it becomes a poison and can cause serious complications. This disorder, if not caught in the first 2 weeks of a newborns life, has a 75% mortality rate. Even those who follow the galactosemic diet may still encounter complications throughout life. There is no treatment or cure, more research is needed, which is why we need to raise funds and awareness.
Where can I contact the organizer with any questions?