Do you love to run? run for a good cause? and get a medal for doing it? Then this is the race for you! All proceedes go to the Galactosemia Foundation (GF) to be used for research and education.
Cost: $20 (comes with medal)
What do I need to do?
Step 1: Buy your ticket
Step 1a: Donate? :)
Step 2: Share with your friends how awesome you are for supporting a great cause!
Step 3: Run a 5k between 9/11-9/13 (whatever is most convenient for you...and post pictures along the way
Step 4: Receive your medal and wear it proudly!
What is the Galactosemia Foundation?
The Galactosemia Foundation is a non-profit charitable organization run solely by volunteers. The foundation realized the need for further information and networking between affected families and professionals. Their main purpose is to educate, support, and provide advocacy for those affected by Galactosemia, as well as to network with professionals to inspire the treatment and advanced research of Galactosemia.
What is Galactosemia?
Galactosemia is a rare metabolic genetic disorder affecting 1 in 60,000 people. A person with Galactosemia is missing the enzyme to break down galactose. Galactose is found in lactose, organ meat, fruits and vegetables, and is produced by our own bodies. Because it cannot be broken down in the body it becomes a poison and can cause serious complications. This disorder, if not caught in the first 2 weeks of a newborns life, has a 75% mortality rate. Even those who follow the galactosemic diet may still encounter complications throughout life. There is no treatment or cure, more research is needed, which is why we need to raise funds and awareness.
Where can I contact the organizer with any questions?