Ziti Lunch/Dinner Fundraiser 

Proceeds to benefit 

The Galactosemia Foundation

www.galactosemia.org

&

Running for Rare/NORD

http://running4rare.org/

 

                     October 14, 2016                     

Lunch- 11:00a.m.-2:00p.m. – dine-in, take-out,

or delivery on orders of 10 or more

 

Dinner- 4:00p.m.-8:00p.m. – dine-in or take-out

 

Tickets can be purchased

at the door, or in advance please contact Nicole Casale

Galactosemic and gluten free meals are available

 

           Adults $10.00  Kids 2-10 $5.00

@

The Italian Community Center

1450 5th Avenue 

Troy, NY 12180

 

Plus!!!

Raffle auction,

50/50, t-shirts,

and much more!

If you would like to

donate or volunteer please contact

Nicole Casale @ nomilkforjoseph@gmail.com

 

 

What is the Galactosemia Foundation?

visit: http://galactosemia.org/

The Galactosemia Foundation is a non-profit charitable organization run solely by volunteers.  The foundation realized the need for further information and networking between affected families and professionals.  Their main purpose is to educate, support, and provide advocacy for those affected by Galactosemia, as well as to network with professionals to inspire the treatment and advanced research of Galactosemia.

 

What is Galactosemia?

Galactosemia is a rare metabolic genetic disorder affecting 1 in 60,000 people.  A person with Galactosemia is missing the enzyme to break down galactose.  Galactose is found in lactose, organ meat, fruits and vegetables, and is produced by our own bodies.  Because it cannot be broken down in the body it becomes a poison and can cause serious complications.  This disorder, if not caught in the first 2 weeks of a newborns life, has a 75% mortality rate.  Even those who follow the galactosemic diet may still encounter complications throughout life.  There is no treatment or cure, more research is needed, which is why we need to raise funds and awareness. 

 

FAQs

 

Where can I contact the organizer with any questions?

nomilkforjoseph@gmail.com